-
Wooden playground elements? Check. Ample shade around the playground? Check. Minutes from a cute downtown area in midcoast Maine? Check. Longfellow playground checks off a lot of boxes for me and has easily become, what I think is, one of the best playgrounds in midcoast Maine!! The Longfellow playground has been a playground that I…
-
This blog is long overdue for some health updates so let’s get into them. All of our Boston visits continue to bring welcomed good news!! First, all of my sutures have been removed. All 80+ of them are gone and that feels really good. All surgical sites are healthy and healing well. I have now…
-
Sometimes the best made plans have to change, and in those moments of change, you have a choice; you can be angry and disappointed, or you look to find the positive. And I…. did a little of both. 🙂 You see, the original plan was for me to complete my radiation treatments in Boston. It…
-
Home. It feels so good to be home. To be with my family, to be with my creature comforts, and to sleep in the silence that you often take for granted until you spend night after night, listening to the moans and groans of a roommate and the annoyance of alarms going off at all…
-
Good news. This week, we received the pathology report back much sooner than we anticipated and it was filled with good news. The margins for this first surgery were clear of cancer! My team in Boston planned on needing a second, and possibly a third surgery to get clean margins, so to get this kind…
-
Help. Such a simple word but it can be, at times, so hard to say and even harder to ask for it. Before I share some ways to help us, I need to acknowledge this community. You have shown up and keep showing up for us. I am deeply moved by all the help and…
-
The first chapter of treatment has begun. I had surgery on Thursday and it all went really well. I came out of the OR with a wound vac over my left elbow, as expected. I was up and moving around a couple of hours after surgery. Pain and nausea were well controlled. I got a…
-
Last year, I shared a great list of family-friendly trails with Acadia National Park and I am back in 2025 to share even MORE great trails for kids within the Park. As my daughter is getting bigger and stronger, we have been able to explore more and more trails around the Park. It is truly…
-
I’ll be honest…I’m kind of dragging my feet putting my thoughts together after my last Boston visit. Not because we received any bad news (actually, the opposite) but because it’s all starting to get real. Like real, real. And with the reality of the treatments beginning soon, grief has been hiding around more corners than…
-
*MFS stands for myxofibrosarcoma (mix-O-fibro-sarcoma)* While you would think that many questions about treatment plans would be a priority for me with the medical team. They weren’t. I wanted to know more about the complicated relationship between Larry (aka the cyst), MFS, and the refrigerator door incident. And here is the down-and-dirty…the cyst was…
