Category Archives: My Cancer Journey

This blog is long overdue for some health updates so let’s get into them. All of our Boston visits continue to bring welcomed good news!!  First, all of my sutures have been removed. All 80+ of them are gone and that feels really good. All surgical sites are healthy and healing well.  I have nowContinue reading “Healing Journey: Latest Updates on My Health”

Sometimes the best made plans have to change, and in those moments of change, you have a choice; you can be angry and disappointed, or you look to find the positive. And I…. did a little of both. 🙂 You see, the original plan was for me to complete my radiation treatments in Boston.  ItContinue reading “Radiation Treatment Decisions: Finding Comfort at Home”

Home. It feels so good to be home. To be with my family, to be with my creature comforts, and to sleep in the silence that you often take for granted until you spend night after night, listening to the moans and groans of a roommate and the annoyance of alarms going off at allContinue reading “Second Surgery for Myxofibrosarcoma is Done!”

Good news. This week, we received the pathology report back much sooner than we anticipated and it was filled with good news. The margins for this first surgery were clear of cancer! My team in Boston planned on needing a second, and possibly a third surgery to get clean margins, so to get this kindContinue reading “Good News: Clear Margins After First Surgery”

Help.  Such a simple word but it can be, at times, so hard to say and even harder to ask for it.  Before I share some ways to help us, I need to acknowledge this community.  You have shown up and keep showing up for us.  I am deeply moved by all the help andContinue reading “Thank You for Your Support: How to Help Us”

The first chapter of treatment has begun.  I had surgery on Thursday and it all went really well.  I came out of the OR with a wound vac over my left elbow, as expected.  I was up and moving around a couple of hours after surgery.  Pain and nausea were well controlled. I got aContinue reading “Surgery Update for Myxofibrosarcoma”

I’ll be honest…I’m kind of dragging my feet putting my thoughts together after my last Boston visit.  Not because we received any bad news (actually, the opposite) but because it’s all starting to get real.  Like real, real. And with the reality of the treatments beginning soon, grief has been hiding around more corners thanContinue reading “Navigating My Cancer Journey: Insights from Boston”

*MFS stands for myxofibrosarcoma (mix-O-fibro-sarcoma)* While you would think that many questions about treatment plans would be a priority for me with the medical team.  They weren’t.  I wanted to know more about the complicated relationship between Larry (aka the cyst), MFS, and the refrigerator door incident.    And here is the down-and-dirty…the cyst wasContinue reading “My Journey with MFS: The Treatment Plan”

*MFS stands for myxofibrosarcoma (mix-O-fibro-sarcoma)* Unfortunately, I have known too many friends and colleagues who have “made the trip” down to Boston.  The trip to see some of the best doctors in the world to get answers and treatments for cancer, rare diagnoses, and many other ailments. I always, for better or worse, considered myselfContinue reading “My Journey with MFS: Seeing Boston’s Top Doctors”

New chapters. The thing about new chapters is that sometimes the beginning and ends of chapters are a bit blurry; while others loudly pronounce their starts and ends.  Monday June 2nd @ 12:32pm is the date and time that marked the loud arrival of a new and very unfamiliar chapter of my life.  It wasContinue reading “Facing a Rare Cancer Diagnosis: My Journey with Myxofibrosarcoma Begins”